No Guts all Glory!

Gastroschisis / NEC / Short Bowel Syndrome / Omegaven


This site is dedicated to my daughter Genevieve who was born 2-17-10 along with her twin sister Gwendolyn.  She has lost most of her intestine due to  complications with Gastroschisis and developing NEC and is now short gut or short bowel syndrome.  She is part of the first generation of children that will not die from this condition, because of a trial drug called OmegavenThis is her story and it is still unfolding.

It is my hope that this will be a website of inspiration and hope as well as information and help for other families that are going through similar situations. 

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Just as Long as I Have Breath

Just as long as I have breath, I must answer "Yes" to life;

Though with pain I made my way, still with hope I meet each day.

If they ask what I did well, tell them I said, "yes", to life.

Just as long as vision lasts, I must answer, "yes," to truth;

in my dream and in my dark; always that elusive spark.

If they ask what I did well, tell them I said, "yes," to truth.

Just as long as my heart beats, I must answer, "yes," to love;

disappointment pierced me through, Still i kept on loving you.

If they ask what I did best, tell them I said "Yes," to love.